Yes....Taylor Swift. You may be wondering why this post is about Taylor Swift. Well, it's because Tegan absolutely loves her! Ever since Tegan was a baby, her music calmed her like nothing else. When Tegan began having seizures, the only thing that would calm her down after was listening to Fearless by Taylor! It was seriously amazing to see this. It never stopped there, Tegan soon recognized other songs by TS, and the music became part of our daily routine.
Therapists who worked with Tegan soon realized if they played her music (mainly Fearless) , they would get way more out of therapy sessions. Tegan will even stand briefly with her leg braces on if she hears the familiar voice:D
Tegan also receives music therapy, and we even had her therapist attempt to play Taylor's music on his guitar.
With all this being said, I am trying very hard to have Tegan meet Taylor Swift one day....I am on Twitter, I am emailing the Ellen Show, anything and everything!!!! I am going to keep trying to have this story heard because it is truly amazing what her music does for our non verbal little girl!
Miss Tegan cannot speak so its my job to make all her dreams come true...and she has her own way of letting us know that this is one of them!!!
My blog about raising a little girl with Atypical Rett Syndrome plus 4 other kids:)
Sunday, June 30, 2013
Thursday, June 13, 2013
My new "Supernanny"
So after years of saying I don't need help to everyone...I finally caved. Five kids including one with special needs is very rewarding and I love it, but it is also unpredictable and chaotic! There are mornings, that I tell my hubby to swing by the Mental Health unit and grab me on his way home:D.....but then again, I don't even have time to shower alot of days, let alone go visit Mental Health.....okay so I am exaggerating a teensy bit.
Aaaaaanyway.....where we are I consider us very lucky for the services we recieve to help with Miss Tegan. I can't really complain about much there. So I asked if there was any way we could recieve some in home domestic support...and YAY....we now recieve a generous amount of hours to help out.
So, I went and found a Supermom who also wanted to earn some extra cash. Trish has 2 amazing kids of her own, who also have some special needs, so this mom knows where I am coming from:D
I met her through the kids school and she is the perfect blend of what my kids and I need. This picture she took while I had my oldest at soccer and the mall for some girl time tonight explains it all......
Aaaaaanyway.....where we are I consider us very lucky for the services we recieve to help with Miss Tegan. I can't really complain about much there. So I asked if there was any way we could recieve some in home domestic support...and YAY....we now recieve a generous amount of hours to help out.
So, I went and found a Supermom who also wanted to earn some extra cash. Trish has 2 amazing kids of her own, who also have some special needs, so this mom knows where I am coming from:D
I met her through the kids school and she is the perfect blend of what my kids and I need. This picture she took while I had my oldest at soccer and the mall for some girl time tonight explains it all......
woman is amazing!!!! My kids are never all sitting in a perfect little line,
beside each other, having snack, watching a movie. It just doesn't happen...
EVER! We came home from the mall, kids were fed, changed diapers, bottle
given, house clean, and cookies made. HEAVEN I TELL YOU!
So this is my thank you going out to Trish!!!
THANK YOU GIRLIE!!!!!!!!!!!
Sunday, June 9, 2013
The things we do to make our special kiddos laugh...
I don't know about you, but I love the giggles that come from kids! Especially the belly laughers...it makesmy day even more when the giggle is coming from a special needs kiddo:D
Tegan is usually giggling at everything, and her laugh is so crazy cute I had to share this video I caught after grocery shopping with her.....it all started when I accidentally pushed the wrong button when unlocking the truck and it made that loud beep when it is locked...apparently I found Tegans new favorite thing to do!
I am sure there were people getting really annoyed with the continuous honking, but I really don't care...because Tegan was "uber" happy and that is all that I care about:D
It is crazy that I think this way now, because when I first knew Tegan was special needs one of my main concerns was the possibility of being embarrassed if she was loud in public. Now...I say BRING IT ON!!!
If you don't like her giggles and shrieks, I will probably just get her to be even louder..cause that is just the kinda proud momma I am!
Monday, June 3, 2013
Mackenzie....Getting Creative with her Brothers and Sisters
Mackenzie is the oldest and is a HUGE help to our family, especially Miss Tegan.. THANK YOU KENZIE!!! Anyway, here is one of her most recent videos she made with all the kiddos...inc. Tegan:)
It is pretty darn cute I must say.... Enjoy!
It is pretty darn cute I must say.... Enjoy!
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